I pray that Ms. Rapp finds hope for Ronan's future, because there is much hope.  Not necessarily in the limited sense that we think about the future, but in a much larger, eternal sense.  In many ways, I think it would be healthier if all parents - regardless of the health or life-expectancy of their children - bore in mind the realities that Ms. Rapp does not have the luxury of ignoring.  None of this is forever.  Let that shape how you choose to live this day you've been given.